- Alliance for Childhood Cancer
- The Alliance is made up of 25 national patient advocacy groups - including CCCA - and medical and scientific organizations who meet regularly, share ideas, and work collaboratively to advance research and policies to prevent cancer, improve public education, and discuss the treatment and survivorship of children and adolescents with cancer.
- Cancer Leadership Council
- Since its founding in 1993, the Cancer Leadership Council has grown to 33 groups, including CCCA, of patient advocacy organizations, professional societies, and research organizations. The collective policy and advocacy efforts of the CLC are dedicated to a wide range of issues, but they relate to a fundamental goal of ensuring cancer patients access to high quality care.
- Childhood Cancer Survivor Study
- The Childhood Cancer Survivor Study (CCSS) is a component of the Long Term Follow Up Study, which began in 1994 and is a collaborative, multi-institutional study funded by a grant from the National Cancer Institute and the St. Jude fundraising organization. The study is composed of individuals who survived five or more years after diagnosis of cancer in childhood or adolescence. The CCSS cohort is assembled through the efforts of 27 participating centers in the U.S. and Canada and coordinated through St. Jude Children's Research Hospital. CCCA President and Founder Susan Weiner serves on the External Advisory Committee of the CCSS and participates in the Annual Investigator Meetings.