Please join Children's Cause for Cancer Advocacy for a Congressional Briefing on 6.23.16
12:00 - 1:30 pm
B369 Rayburn House Office Building | Washington, DC
Lunch will be served.
RSVP or Questions: jkean@childrenscause.org
There are approximately 380,000 survivors of childhood cancer in the United States today. Two-thirds of them are likely to experience at least one late effect of treatment, and almost one-fourth will face one that is serious or life-threatening. Late effects faced by childhood cancer survivors can include second cancers, heart and lung damage, osteoporosis, financial pressures, psycho-social issues, employment and fertility problems.
Because of these risks, childhood cancer survivors require continued follow-up care and face unique challenges in transitioning their experiences, vulnerabilities, and needs throughout their childhood and adult lives, including:
- Limited expertise among mainstream adult providers in pediatric cancer survivorship.
- Transitioning health records and identifying risk profiles.
- Health insurance coverage for continued monitoring and treatment.
- Geographic access to late-effects clinics and specialized care.
Pending legislation – the Childhood Cancer Survivorship, Treatment, Access & Research (STAR) Act (H.R. 3381/S.1883) – calls for further development of policies to address these challenges.
To discuss the needs of those survivors, the briefing will feature:
- Dr. Smita Bhatia, University of Alabama | Professor & Vice Chair of Outcomes for Pediatrics
- Dr. Anne F. Reilly, Children’s Hospital of Philadelphia | Medical Director of Oncology
- Dr. Monica Gramatges, Texas Children’s Hospital | Department of Pediatrics, Long-Term Survivorship Program
- Dr. Julie A. Wolfson, University of Alabama | Institute for Cancer Outcomes & Survivorship
